Devote yourself!

Devote yourself!

Chance for PKAN ChildrenĀ Foundation raises funds to support academic research that can lead to a cure for PKAN. One of those studies is the work of Prof. dr. Dr Ody Sibon (UMCG) and Prof. dr. Susan Hayflick (OHSU, USA). They are very busy developing a substance that...
Establishment (Scientific) Advisory Board

Establishment (Scientific) Advisory Board

We are very happy and proud to introduce the first member of the (Scientific) Advisory Board of Stichting Kans for PKAN Children: Professor Ody Sibon! For many PKAN patients and their relatives, her name is known for the research she is conducting together with Dr....
The fight of a family against PKAN

The fight of a family against PKAN

When both parents have a gen deviation, a child born has 25% chance to have PKAN. All three of the children of family Kulsrud have PKAN. Read their poignant story:...
Grandma tells her story about the fight for her 8-yearold grandson

Grandma tells her story about the fight for her 8-yearold grandson

To get an impression what the PKAN disease is all about, every day another battleā€¦ We thank Janis Healey, grandma of Riley (8 years old), for her openness and effort to raise funding for a cure against PKAN. Worldwide everyone is putting in all effort to make sure...