Devote yourself!

Devote yourself!

Chance for PKAN ChildrenĀ Foundation raises funds to support academic research that can lead to a cure for PKAN. One of those studies is the work of Prof. dr. Dr Ody Sibon (UMCG) and Prof. dr. Susan Hayflick (OHSU, USA). They are very busy developing a substance that...
The fight of a family against PKAN

The fight of a family against PKAN

When both parents have a gen deviation, a child born has 25% chance to have PKAN. All three of the children of family Kulsrud have PKAN. Read their poignant story:...
Grandma tells her story about the fight for her 8-yearold grandson

Grandma tells her story about the fight for her 8-yearold grandson

To get an impression what the PKAN disease is all about, every day another battleā€¦ We thank Janis Healey, grandma of Riley (8 years old), for her openness and effort to raise funding for a cure against PKAN. Worldwide everyone is putting in all effort to make sure...

Pionier Patty Wood over NBIA Disorder Association

Patty Wood has founded the NBIA Disorder Association which fights against diseases which occur after accumulation of iron in the brain, which like PKAN is part of NBIA: Neurodegeneration with Brain Iron Accumulation. This is the story of this powerful American woman...